Miracle Man

Here’s an update on the Miracle Man, John Killian, after his accident on I-30. Channel 8’s George Riba interviewed the Killians. Below is the video. To see the original post, go to http://www.wfaa.com/sports/Marathon-runner-recovers-from-head-on-colision-98766824.html

Duchenne Muscular Dystrophy: Teens ask Congress for support in battling brother’s disease

Dawn Redig with Neighborsgo.com recently wrote an article about Nick nd Abbie Killian (Sam’s brother & sister) who meet with Congressman Ralph Hall in Washington DC.   To read the full article, click here.

Important Message from PPMD Board Chairman… Kinda

Did you see the YouTube video with John & Sam Killian?  Check it out:

About Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is a national nonprofit organization founded in 1994 by parents of children with Duchenne muscular dystrophy.  Duchenne muscular dystrophy is the most common lethal genetic disorder diagnosed during early childhood, affecting approximately 1 out of every 3,500 boys and 20,000 babies born each year.  The organization’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion.  PPMD is the largest grassroots organization in the U.S. entirely focused on Duchenne muscular dystrophy.  It is headquartered in Midddletown, Ohio with offices in Fort Lee, New Jersey.

Typical Progression of Duchenne Muscular Dystrophy

Many parents do not recognize early signs of Duchenne muscular dystrophy (DMD) because their son’s movements only appear slower or a bit more labored than those of other children.  Typically boys diagnosed with DMD lose their ability to walk between the ages of 10 and 14.  These boys will lose most of their upper body strength, including the ability to move their arms, by their late teens.  Also during their teenage years, young men with DMD will need respiratory support at night.  Over time, their respiratory systems will weaken and they will require more constant support.  Medical data suggest that young men with DMD survive only into their 20s.

For more information, please visit Parent Project Muscular Dystrophy: Stages of Duchenne.

Sam’s Family Fun Day 2010 – More info coming soon

Sam’s Family Fun Day 2010 planning has already begun.

Save the Date!

Date: Saturday, October 30, 2010 from 11 am to 5 pm

New Location: CenterPark at NorthPark Center (8687 N. Central Expressway, Dallas, TX 75225)

• Directions and Map of NorthPark Center & Surrounding Area: http://www.northparkcenter.com/directionsmap.html
• Site Map of NorthPark Center & Surrounding Area: http://www.northparkcenter.com/sitemap.html
• Interative Store Map: http://www.northparkcenter.com/map/storemap.php

Check back for more updates, or subscribe to our RSS feed or eNews updates in the side bar.

Craig Miller from The Ticket interviews Sam

Craig Miller from Sportsradio 1310 The Ticket interviewed Sam.  To hear the interview, click the play button below.

Sam’s Family Fun Day Video – Now Available!

John & Sam Killian featured on Channel 11’s Morning News

John & Sam Killian along with Craig Miller of SportsRadio 1310 The Ticket and Dan Crawford, Sam’s Principal at Amy Parks Elementary School were featured on Channel 11’s Morning News and on their website in regards to the upcoming New York Marathon they are runinng in Sam’s honor to help raise money for Parent Project Muscular Dystrophy and to end Duchenne muscular dystropy.  To read the article go to http://cbs11tv.com/health/John.Killian.Marathon.2.1235800.html or you can read a pdf of the article here.

Amy Parks-Heath Elementary Second Grader Sam Killian Named a “Texan with Character” by CBS Channel 11 News

CBS 11 morning news team member Teresa Frosini has named Amy Parks-Heath Elementary second grader Sam Killian a “Texan with Character.” This Friday, October 9, in the 6 o’clock hour of the Channel 11 morning news, Sam’s “Texan with Character” segment will air. (It will most likely be shown in the 6:30/6:45 a.m. time frame.) Seven-year-old Sam has a unique story as he was diagnosed with Duchenne Muscular Dystrophy at a young age. This spotlight helps the Killian Family’s efforts to raise awareness of the disease and to help raise money for research. On November 1, Sam’s dad, John, will be running in his 10th marathon, which is one of the main ways the parents help raise money through Parent Project Muscular Dystrophy (PPMD). John has a 50-member team running in the New York Marathon, and participants include Sam’s principal at Amy Parks, Dan Crawford, and Craig Miller from Sports Radio 1310 The Ticket. Please join us in congratulating Sam for representing RISD as one of their outstanding students.

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