Sam's Day Texas

Miracle Man

Ryan — Mon, 19 Jul 2010 22:01:28 +0000

Here’s an update on the Miracle Man, John Killian, after his accident on I-30. Channel 8’s George Riba interviewed the Killians. Below is the video. To see the original post, go to http://www.wfaa.com/sports/Marathon-runner-recovers-from-head-on-colision-98766824.html

Duchenne Muscular Dystrophy: Teens ask Congress for support in battling brother’s disease

Ryan — Tue, 30 Mar 2010 06:00:41 +0000

Dawn Redig with Neighborsgo.com recently wrote an article about Nick nd Abbie Killian (Sam’s brother & sister) who meet with Congressman Ralph Hall in Washington DC. To read the full article, click here.

Important Message from PPMD Board Chairman… Kinda

Ryan — Sat, 06 Mar 2010 05:12:15 +0000

Did you see the YouTube video with John & Sam Killian? Check it out:

About Parent Project Muscular Dystrophy

Ryan — Thu, 04 Mar 2010 15:10:00 +0000

Parent Project Muscular Dystrophy (PPMD) is a national nonprofit organization founded in 1994 by parents of children with Duchenne muscular dystrophy. Duchenne muscular dystrophy is the most common lethal genetic disorder diagnosed during early childhood, affecting approximately 1 out of every 3,500 boys and 20,000 babies born each year. The organization’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. PPMD is the largest grassroots organization in the U.S. entirely focused on Duchenne muscular dystrophy. It is headquartered in Midddletown, Ohio with offices in Fort Lee, New Jersey.

About Duchenne Muscular Dystrophy: Facts & Statistics

admin — Mon, 01 Mar 2010 21:17:59 +0000

Duchenne Muscular Dystrophy (DMD) is the most common lethal genetic disorder diagnosed during childhood. It is a progressive muscle disorder that causes loss of muscle function and independence. TO THIS DAY…there is NO CURE.

Because the Duchenne Muscular Dystrophy gene is found on the “X” chromosome, the disorder manifests primarily in boys. It knows no boundaries. It affects all races and all cultures.

DMD affects approximately 1 in 3,500 boys and each year, around 20,000 children worldwide are born with DMD.

Although many cases are genetically inherited, approximately 35% of all DMD cases are the result of a new random spontaneous genetic mutation that can occur during any pregnancy regardless of family history.

In 1986, the gene that causes Duchenne Muscular Dystrophy was successfully identified and isolated by medical researchers.

For more information, check out PPMD’s pages about Duchenne including:

Typical Progression of Duchenne Muscular Dystrophy

Ryan — Sun, 28 Feb 2010 15:15:39 +0000

Many parents do not recognize early signs of Duchenne muscular dystrophy (DMD) because their son’s movements only appear slower or a bit more labored than those of other children. Typically boys diagnosed with DMD lose their ability to walk between the ages of 10 and 14. These boys will lose most of their upper body strength, including the ability to move their arms, by their late teens. Also during their teenage years, young men with DMD will need respiratory support at night. Over time, their respiratory systems will weaken and they will require more constant support. Medical data suggest that young men with DMD survive only into their 20s.

For more information, please visit Parent Project Muscular Dystrophy: Stages of Duchenne.

Sam’s Family Fun Day 2010 – More info coming soon

Ryan — Wed, 24 Feb 2010 19:08:28 +0000

Sam’s Family Fun Day 2010 planning has already begun.

Save the Date!

Date: Saturday, October 30, 2010 from 11 am to 5 pm

New Location: CenterPark at NorthPark Center (8687 N. Central Expressway, Dallas, TX 75225)

Directions and Map of NorthPark Center & Surrounding Area: http://www.northparkcenter.com/directionsmap.html
Site Map of NorthPark Center & Surrounding Area: http://www.northparkcenter.com/sitemap.html
Interative Store Map: http://www.northparkcenter.com/map/storemap.php

Check back for more updates, or subscribe to our RSS feed or eNews updates in the side bar.

Craig Miller from The Ticket interviews Sam

Ryan — Fri, 23 Oct 2009 03:59:00 +0000

Craig Miller from Sportsradio 1310 The Ticket interviewed Sam. To hear the interview, click the play button below.

Craig and Sam

Sam’s Family Fun Day Video – Now Available!

Ryan — Mon, 19 Oct 2009 16:28:53 +0000

John & Sam Killian featured on Channel 11’s Morning News

Ryan — Fri, 09 Oct 2009 16:44:33 +0000

John & Sam Killian along with Craig Miller of SportsRadio 1310 The Ticket and Dan Crawford, Sam’s Principal at Amy Parks Elementary School were featured on Channel 11’s Morning News and on their website in regards to the upcoming New York Marathon they are runinng in Sam’s honor to help raise money for Parent Project Muscular Dystrophy and to end Duchenne muscular dystropy. To read the article go to http://cbs11tv.com/health/John.Killian.Marathon.2.1235800.html or you can read a pdf of the article here.