http://samsdaytexas.com Sam’s Day to End Duchenne - Benefiting Parent Project Muscular Dystrophy Tue, 09 Mar 2010 16:28:25 +0000 http://backend.userland.com/rss092 en Did you see the YouTube video with John & Sam Killian?  Check it out: http://samsdaytexas.com/2010/03/05/important-message-from-ppmd-board-chairman-kinda/ Parent Project Muscular Dystrophy (PPMD) is a national nonprofit organization founded in 1994 by parents of children with Duchenne muscular dystrophy.  Duchenne muscular dystrophy is the most common lethal genetic disorder diagnosed during early childhood, affecting approximately 1 out of every 3,500 boys and 20,000 babies born each year.  The ... http://samsdaytexas.com/2010/03/04/about-parent-project-muscular-dystrophy/ Duchenne Muscular Dystrophy (DMD) is the most common lethal genetic disorder diagnosed during childhood.  It is a progressive muscle disorder that causes loss of muscle function and independence.  TO THIS DAY...there is NO CURE. Because the Duchenne Muscular Dystrophy gene is found on the "X" chromosome, the disorder manifests primarily in ... http://samsdaytexas.com/2010/03/01/facts-statistics/ Many parents do not recognize early signs of Duchenne muscular dystrophy (DMD) because their son's movements only appear slower or a bit more labored than those of other children.  Typically boys diagnosed with DMD lose their ability to walk between the ages of 10 and 14.  These boys will lose ... http://samsdaytexas.com/2010/02/28/typical-progression-of-duchenne-muscular-dystrophy/ Sam's Family Fun Day 2010 planning has already begun. Save the Date! Saturday, October 9, 2010 from 10 am to 2 pm. Location is TBD. Check back for more updates, or subscribe to our RSS feed or eNews updates in the side bar. http://samsdaytexas.com/2010/02/24/sams-family-fun-day-2010-save-the-date/ Craig Miller from Sportsradio 1310 The Ticket interviewed Sam.  To hear the interview, click the play button below. [caption id="attachment_414" align="aligncenter" width="300" caption="Craig and Sam"][/caption] http://samsdaytexas.com/2009/10/22/craig-miller-from-the-ticket-interviews-sam/ http://samsdaytexas.com/2009/10/19/sams-family-fun-day-video-now-available/ John & Sam Killian along with Craig Miller of SportsRadio 1310 The Ticket and Dan Crawford, Sam's Principal at Amy Parks Elementary School were featured on Channel 11's Morning News and on their website in regards to the upcoming New York Marathon they are runinng in Sam's honor to help ... http://samsdaytexas.com/2009/10/09/john-sam-killian-featured-on-channel-11s-morning-news/ CBS 11 morning news team member Teresa Frosini has named Amy Parks-Heath Elementary second grader Sam Killian a "Texan with Character." This Friday, October 9, in the 6 o'clock hour of the Channel 11 morning news, Sam's "Texan with Character" segment will air. (It will most likely be shown in the 6:30/6:45 a.m. time ... http://samsdaytexas.com/2009/10/07/amy-parks-heath-elementary-second-grader-sam-killian-named-a-texan-with-character-by-cbs-channel-11-news/ Here's the commercial that TIAA CREF Sponsored for Coach to Cure MD. If you love the rivalry between Michigan and Ohio State, you'll love this commercial. http://samsdaytexas.com/2009/09/29/coach-to-cure-md-tiaa-sponsored-commercial/